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Goodbye Reflux, Hello Sloppy Food

Sunday 22 February 2015

Hey!


I hope you are all well! After Disneyland I came to GOSH to have my Antibody-Mediated Rejection treatment which all went okay, I was attached to the IV pump for 12 hours and then was allowed home the next day but on the way home I became quite ill and started to get a headache and was sick, I got home and Helen rang and said my Tacrolimus level was very high so I was to miss that nights dose and change the dose in the morning. I was in bed for 2 days because I could not move as the headache stayed the whole 2 days and I would just be sick, I felt better after a few days but my appetite hasn't been very good since, I went to my friends and tried to forget about feeling ill but the morning I woke up and didn't feel well again but mornings are always worse, this was pancake day so of course I had a pancake or 2 :P



Last Wednesday I came to GOSH because I had my fundoplication on Thursday, I went to theatre at 1:00pm and came around at 5 o'clock ish in a lot of pain and had a NG tube down my nose, I basically slept for the rest of Thursday and the whole of friday(i do that after any anaesthetic haha) I got out of bed on Saturday to walk and it felt like Transplant all over again, I was dizzy my legs felt like jelly and I could hardly walk, I have to have a sloppy food diet for a while now, but I'm feeling fed up of it already haha! I'm going home tomorrow but decided not to go back to college until next week as i'm in quite a lot of pain where they did the keyholes to. 

A picture of what a Fundoplication is 

I'm back up at GOSH again in about 2 weeks for another lot of Antibody-Mediated Treatment, I will have this every month for a few months to hopefully say goodbye to these Antibodies! 


As always, thank you for reading
Speak soon
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Disneyland Paris!!!!

Saturday 7 February 2015

Hey!

i'm back from Disneyland! it was AMAZING, absolutely AMAZING! i loved every second of it, the journey there and back wasn't great but it was all worth it! when we got there it was quite warm, but on Thursday when we went into the parks it was freezing! i had a photo with minnie mouse and got hers, mickeys and queen of hearts signature, i didn't go on many rides because of my piccline and didn't want to risk it and plus it was too cold! i went on one ride and it was probably the scariest ride I've been on because i don't go on many rides haha! Olivia said she was going to watch so she saw us on the ride at the beginning and she saw my face and she couldn't stop laughing when i got off because my face was apparently very funny! :P i loved the parade, seeing all the characters was lovely and i got some photos too so i will post some :) i bought quite a lot of stuff and getting it into my suitcase when we left was hard work haha, we stayed in hotel cheyenne and it was a nice hotel! i went with college but i stayed with my friends the whole time, we had 2 rooms but there was a door in the middle so we could go in each others rooms, they made it the best holiday I've been on, there is never a dull moment when i'm with them, so many laughs! it started to snow when we were there too but not enough so it would set. I would love to go back to Disneyland one day and i will! but i have it off my bucket list, i am so happy i got to on this adventure with my friends with me and because of my donor <3 

















I go up to GOSH Tuesday night for my Antibody-Mediated Rejection treatment and then should come home Thursday and then go back up for my fundoplication on the 19th Feb!  


As always, thank you for reading
Speak soon
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The Beautiful Harriet Sheehan

Sunday 1 February 2015

Hey guys!

I know I said I was going to do a blog post after Disneyland but today the CF community had some very bad news that Harriet Sheehan passed away this morning, she was the kindest person i knew, she would do anything for anyone even though she was battling with CF, she was in hospital since june last year trying to battle against CF! before Harriet died she had a wish to meet one direction and it came true, which i was super jealous about but I was so happy it came true for her, she was one amazing girl, everyone with CF is amazing and strong and if I didn't have CF then I wouldn't be the person I am today. We are all so lucky, I'm lucky because I had my second chance, Harriet couldn't get on the transplant list because of reasons. We are lucky to be here with our families, some people take life for granted and they don't realise just how lucky they are just to breathe. Harriet was too young to be taken away from us all. I will never forget when i would walk past her hospital room when we were in the same hospital and see that big smile she would give me and say hello! I am thinking of her mum, dad and little sister at this sad time. Harriet is no longer fighting and can breathe easy, Rest In Peace beautiful xxxx



As always, thank you for reading
Speak soon
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