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Goodbye blues & Clinic

Thursday 22 May 2014

hey :)


hello everyone, so I've actually left school now!!! my last day was on tuesday, and it was emotional but really good day, at lunch the whole of year 11 went up top field and had all our blouses signed and took a lot of pictures, some people had silly string and foam haha! then we had our last assembly and it was so funny when our head teacher said 'theres one thing i needed to remind myself and thats to take a selfie' haha! i might of said this before but even though i missed like a year and a bit of school i will miss it and miss everyone! i only go back into school for my exams and if i want to go in for revision :) which i am tomorrow because i have a textiles exam and I'm going in for revision before the exam. everyone says, you won't forget your school days and i defiantly won't :) 



after i left school on tuesday, me, mum and dad travelled up to London because GOSH said they really needed to see me because my neutrophils weren't going up and because i was in hospital a month ago they was worried they were missing something, we got to GOSH accommodation and they said they was no room in my name so in the end they sent us to powis place on the top floor and there was no lifts!! i was knackered by the time i got to the top haha, we went to clinic on wednesday and it wasn't the best clinic but i suppose you can't have great clinic every time, i did the usual tests, bloods, x-ray and lung function and chest x-ray looked okay, and my percentage of lung function was good but another test i did at lung function was too high, and also my platelets are low at 64 so i can bruise and bleed easily so i need to be careful! and i also mentioned about my hair falling out loads and i have bold patches and theres nothing they can do about it :( Helen said that it normally sorts itself out but can take up to a year post transplant :( I'm so scared I'm going to have no hair left. so clinic was good like i said before :( because I've been to clinic I'm not going up on the 28th but i have to go back on the 18th june to get checked over again :(

here are some pictures of my last day at school.. 


best friends x
will miss these girls x

the whole of year 11 :)


my best friend since primary school
the best tutor x 


one of my science teachers :) x




speak soon! 


xxx





Exams!

Wednesday 14 May 2014

hiya

hi everyone, just a short post! so i did my first exam yesterday and it went okay actually,  it was a biology exam, there were some hard questions but hopefully i did okay! i have my chemistry one tomorrow!! so I'm quickly writing this in-between revision! my nurse came last week and took my bloods and guess what? my neutrophils were low!! but they wasn't too low so i could still sit my exams! but i don't do my exams in the hall with everyone else anyway, which is more calm and less stressful :) GOSH finally compromised and said i could have my clinic appointment on the 28th may, where i have no exams from after my textiles exam on the 23rd to the 3rd june, which is my english exam, so i get a break from exams but that means more revision! 

i would like to thank everyone who said good luck to me for my exams and i would like to say good luck to all the rest of the year 11's in the country taking their exams! :) 

this what i feel like doing revision!

speak soon!

xxx

Cystic Fibrosis Awareness Month

Tuesday 6 May 2014

hello! 

This month is Cystic Fibrosis Awareness month! and there will be a lot of awareness! 
for those of you that don't know about Cystic Fibrosis: 

Cystic Fibrosis is an inherited disease caused by a faulty gene, this gene controls the movement of salt and water in and out of your cells, so the lungs and digestive system become clogged with mucus, making it hard to breathe and digest food. 
More than 2.5 million people in the UK carry the faulty gene, around 1 in 25 of the population.
there is currently no cure for Cystic Fibrosis but many treatments are available to manage it, including physiotherapy, exercise, medication and nutrition.
Each week, 5 babies are born with cystic fibrosis and 2 people die!

At end stage Cystic fibrosis, you end up needing a double lung transplant and i got to that stage of needing one, luckily i received one and my life has changed so much, but if there was a cure for Cystic Fibrosis then people wouldn't need a lung transplant. so please everyone do some fundraising or if you would like to donate to the trust then go to The Cystic Fibrosis Trust.

The Organs Affected By Cystic Fibrosis 



update:
i was meant to have clinic at GOSH tomorrow but they cancelled it! then changed it to next week so i would of had to travel up after my first exam and then have clinic on the wednesday then travel back for my chemistry exam on the thursday! but then today we got a letter in the post saying my clinic appointment isn't until 4th june now! i still have the problem of having exams on the tuesday and thursday! which is really annoying! but ill just have to revise in the car! but i only have 10 school days left until i leave forever!!!! 
i bought my shoes, necklace and bag for prom! and I'm waiting for my prom dress to come! as I've ordered it in a shop but it take 4 months to come so luckily i ordered it in January. We finally have transport to prom now! :D (my prom is on July 4th) 
My dad booked our holiday to Hungary in august! I'm sooo excited but its my first time to go on an airplane! which is scary!


speak soon! 

xxx
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