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Thursday, 28 February 2013

Well they let me come home! :D i came home on Friday and on Friday night i went to work with my dad delivering mcdonalds haha! at the moment my mucus isn't coming up, I've tried everything! even the new medicine mucodyne isn't helping, today my bipap machine is coming so i have my own machine to keep at home, I'm still feeling tired and have no energy pretty much all the time but thats because my lungs are so poorly. Im still on IVs and finish them Monday or i might have to stay on them longer as my nurse came out to take blood for my CRP levels ad they've gone up a little bit and the doctor said i could go back into hospital but i want to stay home as i don't feel that poorly but if i got worse then i would go in. Today is my dog missy's 1st birthday!! :D i bought her a card and some treats haha!

well thats all really, hopefully soon i will have my new lungs!!

9 months today on transplant list..x

bipap and weight gain!

Wednesday, 20 February 2013

i tried bipap today! its actually ok when you put it on and get used to it, but it takes a lot to get used to it though, it feels like when your walking against the wind and it catches your breath but with bipap you have to go with it, once it knows your breathing pattern it goes along with you so its not so bad. Also i have put more weight on!! :D I'm 32.1kgs now! :D i cant believe I've put on 2kgs since christmas! When my doctor came to see me today, he said if i get along with bipap and i feel better i can go home friday, but not with bipap as I'm not needing it at night time just for physio, but there funding the money to get me one for when i do need it. Tonight i started a medicine that will loosen my mucus, its called Mucodyne so hopefully that will start to work soon.

this is the bipap machine.

8 months 20 days on transplant list..x

Another hospital visit...

Tuesday, 19 February 2013

Hello there my lovely blog readers! :) when i finished IVs last time i stayed really well! i went out to town with my mum shopping(i go everywhere with my mum) my nieces and nephews came round a few times, i went out delivering mcdonalds with my dad as he delivers it! ;) i love it! i think its actually so fun! and because i can get mcdonalds everyday if i wanted ;) i had a check up with my doctor a week after i left hospital to check i was ok and i was so i went home again and stayed home another week :) then my oxygen started to go up more and more and i was getting some chest pain so my nurse came out and my physio and they said i had to come in hospital! oh yes I'm back in hospital again!!! :( i came in yesterday to start IV meropenem and amikacin. BUT!! my weight has gone up and i am now.... 31.6kgs!! i haven't been this weight since 2010!?! so thats good :D I had my bloods checked and my infection levels were only 24 so they dont know whats actually going on! im on 2.5 to 3 litres of oxygen at the moment so tomorrow i am going to try out bipap, for peole who dont know what bipap is: bipap is a breathing apparatus that helps more air get into my lungs, so basically it helps so it basically gives me a break of trying so hard to breathe, normally you have it over night but at the moment i dont need it over night so im doing it for physio. 

today i went to see a hospice as my doctor said me and my mum should go there for rest bite! the place we went to was really nice and theres alot for me to do there! so we are thinking about going there for a couple days :) 

ill update you all again soon! thank you for reading my blog xx

8 months 19 days on transplant list..x
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